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Advancing Tickborne Disease Education, Empowerment, and Research

Every Patient Matters. Every Voice Counts.

At LymeDisease.org, we are driven by one purpose—to improve the lives of those affected by Lyme disease and other tickborne illnesses. We understand the physical, emotional, and financial toll these diseases take, and that’s why our mission is not just about science; it’s about people.

Through cutting-edge research, patient advocacy, and education, we bring precision and care to the fight against tickborne diseases. From connecting patients with resources to empowering them to participate in research like MyLymeData, we are building a future where diagnoses are timely, treatments are effective, and no voice goes unheard.

You have questions. We have answers.

Navigating Life with Lyme Disease: Stories of Strength

Real people. Real challenges. Real hope.

From Diagnosis to Hope: Her Lyme Disease Story

Meet Jill
“A patient is the best source providers have to what is happening inside the patient’s own body – it is imperative that each patient have input into his or her individualized treatment plan. Patients are the experts of this disease not the physicians. It is so important that they are listened to and taken seriously, or we will never come to better understand this disease in all its complexity.”

Ten years strong: How MyLymeData works to transform Lyme research

A decade ago, LymeDisease.org introduced MyLymeData, now recognized as the largest patient-driven registry for Lyme disease in the United States. What is a patient registry? It’s a system that collects information about patients with the same medical condition, in order to figure out the best ways to improve their care.

Jesse Colin Young, the voice of ’60s anthem “Get Together,” later sang about Lyme disease

Anyone who was around during the late 1960s is sure to remember these words: “Come on people now…Smile on your brother…Everybody get together…Try to love one another…Right now.” Jesse Colin Young and the Youngbloods were not the first to record the song “Get Together,” but their version became a huge

The struggle for a normal life after Lyme disease

You might not think that a mini-series called “Girl at a Bar” is about Lyme disease. But it is. Or more specifically, it’s about a young woman trying to return to normalcy after Lyme disease stole five years of her life. “Girl at a Bar” is the work of Tracy

David vs. Goliath: Lyme patients and firefighters stall BOP decision again

California’s Board of Pharmacy (BOP) has been trying its darnedest to restrict access to IV glutathione and other alternative treatments. (See here for background on the issue.) Yet, vociferous opposition by chronic Lyme patients, the state’s firefighters, and others have turned this issue into the opposite of a “slam dunk”

Will glutathione treatments survive? Controversial BOP deadline looms.

For almost a year now, the California Board of Pharmacy (BOP) has been trying to impose severe restrictions on so-called “Category 1 sterile compounds,” much to the dismay of chronically ill patients and the state’s firefighters. Now, the deadline is getting closer, where the BOP must either pass the proposed

Bitten by a Tick?
Worried It’s Lyme?

You’re not alone—and knowing what to do next is key.
Take the quiz to to find out if you’re at risk for tick-borne illness and what steps to take to get the right diagnosis.”
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