August 12, 2025

A decade ago, LymeDisease.org introduced MyLymeData, now recognized as the largest patient-driven registry for Lyme disease in the United States. What is a patient registry? It’s a system that collects information about patients with the same medical condition, in order to figure out the best ways to improve their care. Why is this significant? Because […]

Anyone who was around during the late 1960s is sure to remember these words: “Come on people now…Smile on your brother…Everybody get together…Try to love one another…Right now.” Jesse Colin Young and the Youngbloods were not the first to record the song “Get Together,” but their version became a huge hit and helped propel the

You might not think that a mini-series called “Girl at a Bar” is about Lyme disease. But it is. Or more specifically, it’s about a young woman trying to return to normalcy after Lyme disease stole five years of her life. “Girl at a Bar” is the work of Tracy Mullholland, an actress, writer, producer,

California’s Board of Pharmacy (BOP) has been trying its darnedest to restrict access to IV glutathione and other alternative treatments. (See here for background on the issue.) Yet, vociferous opposition by chronic Lyme patients, the state’s firefighters, and others have turned this issue into the opposite of a “slam dunk” for the board. Instead, there

For almost a year now, the California Board of Pharmacy (BOP) has been trying to impose severe restrictions on so-called “Category 1 sterile compounds,” much to the dismay of chronically ill patients and the state’s firefighters. Now, the deadline is getting closer, where the BOP must either pass the proposed regulations–or scrap them and start

On January 8, the California Board of Pharmacy (BOP) was discussing potential restrictions on Category One sterile compounds, including nebulized and IV glutathione. Glutathione is not only beneficial for Lyme disease patients but also proven to help firefighters recover from lung damage caused by their dangerous work. In a twist of irony, on the same