Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
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A decade ago, LymeDisease.org introduced MyLymeData, now recognized as the largest patient-driven registry for Lyme disease in the United States. What is a patient registry? It’s a system that collects
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Anyone who was around during the late 1960s is sure to remember these words: “Come on people now…Smile on your brother…Everybody get together…Try to love one another…Right now.” Jesse Colin
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You might not think that a mini-series called “Girl at a Bar” is about Lyme disease. But it is. Or more specifically, it’s about a young woman trying to return
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California’s Board of Pharmacy (BOP) has been trying its darnedest to restrict access to IV glutathione and other alternative treatments. (See here for background on the issue.) Yet, vociferous opposition
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For almost a year now, the California Board of Pharmacy (BOP) has been trying to impose severe restrictions on so-called “Category 1 sterile compounds,” much to the dismay of chronically
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On January 8, the California Board of Pharmacy (BOP) was discussing potential restrictions on Category One sterile compounds, including nebulized and IV glutathione. Glutathione is not only beneficial for Lyme